(Written by Brandi — Jonas Morgan’s mommy)
Jonas Lee Morgan was born on April 8, 2011 at 4:39pm, weighing in at 5lbs 9oz and stretching out at 17 1/2 inches long. He had a head full of hair that swirled perfectly at the crown and was the most beautiful little guy we had ever laid eyes on. What couldn’t be seen, though, was his broken heart.
At 25 weeks into the pregnancy, we learned that Jonas had multiple major heart defects with no treatment options available. We were told his heart would fail him shortly after birth and that we would not be leaving the hospital with our baby, as we had dreamed of for so long. For the next 12 weeks, Jonas continued to grow and his sweet little body didn’t know he was sick. We enjoyed watching him dance to music, respond to our voices, and push back when Bentley (our dog) snuggled up to him and applied too much pressure for his liking. Every kick and every roll was a moment in time we only wished we could freeze.
At 37 weeks gestation, Jonas was born via emergency c-section. And, just as the doctor’s warned us, his broken heart quickly began to fail him. Jonas lived 5 hours and 41 minutes. In that short time he captured our hearts and changed the core of who we are and everything we thought was important in life. He made us better people and he lit a fire inside of us to do something more and be part of something bigger than just our day-to-day lives. Jonas IS why we are here today, raising awareness and raising funds for the American Heart Association (AHA). We long for the day that a baby receives the same diagnosis as Jonas, but has the opportunity for a different outcome. We want to see the day that babies live and thrive, even after being diagnosed with “Jonas’ Heart”.
(Photo Credit for all images of Jonas: Deborah Billingsley)
Our team participated in the American Heart Association’s Heart Walk to remember and honor our Jonas and raise money that would impact the lives of so many little ones fighting to live because of heart problems.
And, the most exciting thing about this years heart walk!? It was IN HONOR OF JONAS! And, because the heart walk fell just days after Jonas’ 5th birthday, the AHA threw a BIRTHDAY PARTY at the walk. We are honored, overwhelmed, and feel extremely blessed by the American Heart Association’s willingness to honor our little guy in such a big way.